So, it seems like we are not as far down 'regulation road' as perhaps we thought. I am still not feeling right and we are rapidly getting to the point where we are becoming more and more nervous about exactly how long it is going to take before we settle on the right medication.
The Doctor tested my bloods for FT4 and for TSH. My FT4 was still registering in the 'normal' range at 1.4, but for my age the goal is to be closer to the higher end of that range (which is 1.85). My TSH still showed as suppressed. WEIRD.
I knew something was wrong, I could feel it, and I have read so many books and studies about thyroid disease recently and I just had a feeling that what I was feeling seemed to fit with my FT3 levels being low. I mentioned this to the doctor, and I'm not really sure if he agreed, but since I'm the one who knows my body the best he ordered the bloods again - FT3, FT4 and TSH.
I didn't realize he'd put a rush on them, and yesterday afternoon the office called to say that my FT3 levels were indeed low and that they would like me to start taking the cytomel medication as soon as possible.
It was good news and bad, but mostly good. Good because I now knew I wasn't going crazy - I knew my body well enough to know what felt wrong and was knowledgeable about the different thyroid processed and hormones to be able to work out that it was the T3 causing my problems.
Bad because it meant some more trial & error on a new medication and we really don't know how it's going to effect my body, or if it's going to mean starting back on trying to work out dosage and changing pills every couple weeks again.
I guess we'll see.
We are also being referred to see a specialist, a different one this time. They have referred me to OSHU which is one of the very best hospitals in the area and they have a very good reputation with Endocrine disorders. I'm not sure how long that will take, and perhaps before I get the appointment I will already be feeling better with the new meds... we can but hope?!?!
Showing posts with label blood tests. Show all posts
Showing posts with label blood tests. Show all posts
Wednesday, 3 March 2010
Thursday, 14 January 2010
Update from Dr's visit
Last week I went to the Doctors to have a blood test... OMG it was a chore. They couldn't get blood... Firstly, they went into the left arm, as usual... it 'sprayed' into the syringe, but nothing... and as he moved the needle around in my arm he punctured through the other side of the vein. Whoops!
So, then he moved over to the right arm. I'm not the biggest fan of having blood drawn from my right arm, and I don't know why, but I have good veins there and so he gave a try there. So, he put the needle in, and completely missed the vein this time... I don't know what happened, but as he poked around and tried to find it he couldn't get a thing! OUCH!
To be completely honest, I don't think he knew what to do. He said this has never happened to him before, and he has taken my bloods before without any trouble...
He put me into the little room where I had my ECG taken before and asked me to drink some water and wait there. He would have the other guy, Dr John, do my bloods... I was getting nervous by now. I had gotten over my fear of needles back in the summer when I started having all the blood tests and stuff. I found the lab at DFM was great and I hadn't had any problems there... until now.
I sat there and drank as much water as I possibly could (to keep me from worrying, and also to hydrate me, in case that was the problem) and I hoped they wouldn't have to use a butterfly needle.
After about a half hour, maybe more Mike came and got me and said Dr John was going to take my bloods. He had a feel of my veins and said there shouldn't have been a problem - I still had good veins!
As I'm sitting there he gets the butterfly needle out - OH NO! My heart flipped, I hated those. They were sore and made me bruise badly... and regardless of what "they" say, they are not the easiest or least painful way to take blood...
I told him I didn't like the butterfly needles because I always had trouble with them, and so he used the smallest needle possible. He had Mike hold the receiver tube end and he felt around my right arm. I could tell he was going to insert lower down the arm from usual, in the forearm!
OUCH! The needle went in, and yes, it bloody hurt! It went deep and it was sharp as heck. He drew the blood slowly... a deep dark red blood. He said it looked a good healthy colour and that there shouldn't have been a problem.
He put some cotton on my arm, told me my results would be back by Friday and let me leave!
Man, I was hurting. I felt like a pin cushion... before I'd even gone round to the lab guys I'd had my HepA booster by Michelle too... I wanted something to eat and I wanted to be home.
My arm hurt to move it, it hurt to drive... so I clicked into cruise control and headed back to Mac.
Within about an hour the bruise was horrific. By the evening it had gotten worse again, and was getting bigger by the morning! I will never believe anyone who tells me the butterfly needle doesn't hurt and doesn't bruise! It does both!
Anyway, a couple of days later we went to get the results... we were hoping for something good. I'd been having a LOT of hair loss over the last couple of weeks and my energy levels were falling in the afternoon again.
Surprise, surprise, my T4 levels tested in the 'normal' range for the first time ever. I was super shocked, esp since I wasn't feeling "back to normal" (whatever normal is). My Dr is really good, he knows he's not treating the numbers, but this was the first hurdle. To get me back in the range, and then we could start aiming for feeling better.
Over the last few months my levels have looked like this on paper:
Up til now I'd been told that I should be feeling better by Easter... now he reckons it might be the 'summer'... I just hope it's soon... I could really do with a break on this Graves Disease. This is the first time I wouldn't be increasing my Synthroid after a blood test.
The Doctor also told me that considering the level of Synthroid it has taken to drag me back into the 'normal' range it is expected that my thyroid has been completely obliterated. Not a partial like expected, but that the whole thing is dust now! Nice thought to leave you with eh?!?!?!
So, then he moved over to the right arm. I'm not the biggest fan of having blood drawn from my right arm, and I don't know why, but I have good veins there and so he gave a try there. So, he put the needle in, and completely missed the vein this time... I don't know what happened, but as he poked around and tried to find it he couldn't get a thing! OUCH!
To be completely honest, I don't think he knew what to do. He said this has never happened to him before, and he has taken my bloods before without any trouble...
He put me into the little room where I had my ECG taken before and asked me to drink some water and wait there. He would have the other guy, Dr John, do my bloods... I was getting nervous by now. I had gotten over my fear of needles back in the summer when I started having all the blood tests and stuff. I found the lab at DFM was great and I hadn't had any problems there... until now.
I sat there and drank as much water as I possibly could (to keep me from worrying, and also to hydrate me, in case that was the problem) and I hoped they wouldn't have to use a butterfly needle.
After about a half hour, maybe more Mike came and got me and said Dr John was going to take my bloods. He had a feel of my veins and said there shouldn't have been a problem - I still had good veins!
As I'm sitting there he gets the butterfly needle out - OH NO! My heart flipped, I hated those. They were sore and made me bruise badly... and regardless of what "they" say, they are not the easiest or least painful way to take blood...
I told him I didn't like the butterfly needles because I always had trouble with them, and so he used the smallest needle possible. He had Mike hold the receiver tube end and he felt around my right arm. I could tell he was going to insert lower down the arm from usual, in the forearm!
OUCH! The needle went in, and yes, it bloody hurt! It went deep and it was sharp as heck. He drew the blood slowly... a deep dark red blood. He said it looked a good healthy colour and that there shouldn't have been a problem.
He put some cotton on my arm, told me my results would be back by Friday and let me leave!
Man, I was hurting. I felt like a pin cushion... before I'd even gone round to the lab guys I'd had my HepA booster by Michelle too... I wanted something to eat and I wanted to be home.
My arm hurt to move it, it hurt to drive... so I clicked into cruise control and headed back to Mac.
Within about an hour the bruise was horrific. By the evening it had gotten worse again, and was getting bigger by the morning! I will never believe anyone who tells me the butterfly needle doesn't hurt and doesn't bruise! It does both!
Anyway, a couple of days later we went to get the results... we were hoping for something good. I'd been having a LOT of hair loss over the last couple of weeks and my energy levels were falling in the afternoon again.
Surprise, surprise, my T4 levels tested in the 'normal' range for the first time ever. I was super shocked, esp since I wasn't feeling "back to normal" (whatever normal is). My Dr is really good, he knows he's not treating the numbers, but this was the first hurdle. To get me back in the range, and then we could start aiming for feeling better.
Over the last few months my levels have looked like this on paper:
Up til now I'd been told that I should be feeling better by Easter... now he reckons it might be the 'summer'... I just hope it's soon... I could really do with a break on this Graves Disease. This is the first time I wouldn't be increasing my Synthroid after a blood test.
The Doctor also told me that considering the level of Synthroid it has taken to drag me back into the 'normal' range it is expected that my thyroid has been completely obliterated. Not a partial like expected, but that the whole thing is dust now! Nice thought to leave you with eh?!?!?!
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